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MEDICAL DIAGNOSIS, BIOMEDICAL PROTOCALS
& THERAPEUTIC SERVICE RESOURCES

The purpose of this page is to link you to other pivotal information resources on existing and emerging biological research into medical tests and treatments as well as nutritional and alternative health supports for children with a history of late on-set Autism, features of Childhood Disintegrative Disorder or other forms of Autism that seem to have symptoms related to biological conditions beyond Autism's innate disorders of the central nervous system. There are U.S.A. national contacts and a several of Oregon's local contacts, as a sample of what you may easily find once you connect your own regions Autism community network. If you live in areas of Oregon that are far from these providers, still call them, because they can connect you to peers in other cities around Oregon. This is a list to give you a stable starting place.


NOTICE: THRESHOLD IS NOT A MEDICAL PROVIDER AND THEREFORE, THESE ARE ALL INFORMATION REFERRALS, AND ARE NOT PRESCRIPTIVE IN NATURE.

Families should ALWAYS see your child's medical doctor to discuss any and all forms of medical testing and interventions, and your doctor, a registered dietician or alternative health care provider BEFORE using any and all suppliments or special and/or restrictive diets for children/adults with Autism and/or other health conditions. ALWAYS. These providers may not agree with each other or your choices, but you need to keep your primary provider informed, in case the combination of protocals you may try might have side effects or drug interaction risks.


AUTISM RESEARCH CENTERS:

Resources listed here will take you to the research centers around the nation with which they are affiliated too. Families may write or email these agencies for written information. But they do NOT generally want or take or return family phone calls for individual questions and answers.

A) PUBLIC

National Institute of Health (NIH)/Mental Health (NIMH) Autism Division
Contact: Dr. Maria Bristol-Powers
Formerly Early Childhood Director/UNC/Division TEACCH
Phone: 301-443-4513
Email:
nimhinfo@nih.gov
Web:
www.nimh.nih.gov



B) PRIVATE TAX-EXEMPT NON-PROFITS

Charitable Nonprofit Information about and Fundraising and Advocating for Autism Research

National Alliance for Autism Research (NAAR)
1-888-777-NAAR
414 Wall Street, Research Pk
Princeton, N.J. 08540
www.naar.org



Alternative and Biomedical Research and Protocals, Commentary on Traditional Medical Model Approach & Behavioral Treatment Literature Review Sources

Autism Research Institute (ARI)
Contact: Dr. Bernard Rimland
4182 Adams Avenue
San Diego California 92116
619-281-7165 (voice message service only--no return call)
FAX: 619-563-6840
www.autism.com/ari/
NOTE: You may request a copy of their extensive newsletter and information on vitamin research and trial of intervention protocals. You may also order the new DAN! biomedical protocals guidebook from ARI to share with your medical & alternative health care providers.The best way to learn about the ARI is by their web page and the best way to contact Dr. Rimland is by voice mail, fax or mail. It is a research center, not a family service provider, so please do not call. You may request a copy of the ARI newsletter and information on Autism research topics.

Center for the Study of Autism (CSA)
Contact: Dr. Stephen Edelson
FAX: 503-363-9110*99+trans.
Email: se@edelson.net
Web:
www.autism.org
NOTE: The best way to learn about the CSA is by their web page and the best way to contact Dr. Edelson is by email or fax. It is a research center, not a family service provider, so please do not call. You may request a copy of the CSA newsletter and information on Autism research topics. His web page is a central source of up-to-date information on an arrary of Autism research topics.



Association for Science in Autism Treatment
516-466-4400
175 Great Neck Road, #406
Great Neck NY 11021
www.ASATonline.org
Advocates for mainly a mechanistic world view of positivist research as only scientifically proven approaches to best Autism practice. Therefore, ASAT promotes only a more traditional medical (non-treatment) view of, and applied behavioral analysis as, treatments for the Autism Spectrum.



Dr. Jean Ayers
Sensory Integration International
P.O. Box 9013,
Torrance, CA 90508
i
nfo@sensoryint.com
www.sensoryint.com

Another source of information on sensory resources is
www.SensoryResources.com



PNW SCREENING DIAGNOSIS & TREATMENT SERVICES:
:
Please note that only a medical examination by a licensed doctor or psychologists, using standardized criteria, can be used to diagnose any Autism Spectrum Disorder.

The purpose of most public systems’ evaluations are to establish eligibility using only legal, and not medical criteria. While they may be very similar in form, the function of diagnostic and evaluation appointments and tools are very different. This is important.

Oregon Health Sciences University (OHSU),
Portland, Oregon
Contact: Children’s Developmental Rehabilitation Center (CDRC)
Phone: 503-494-8095
Email: cdrcinfo@ohsu.edu
Web:
www.ohsu.edu/cdrc
This is where families can get a comprehensive early childhood development and behavior evaluations by a transdisciplinary team of clinical professionals. This kind of general team approach is well-suited in helping families get reliable overall measures of a child's early developmental baselines across a number of fields such as psychological, speech, occupational, physical therapies, but without necessarily reaching the goal of having the team reach a clear consensus about whether their child meets the criteria of a specific Autism Spectrum condition. Parents have reported that they have found that the OHSU team approach may not be the most clear, timely, or accurate way to seek an early as possible diagnosis for children with Autism, not since they not longer have a psychiatric Autism specialist seat on the team. Since Dr. Stubbs has retired (we all sure miss him) these are the specific Autism early screening and timely diagnositic resources we have been able to put together:

Direct Service Private Practice: Screening and Diagnosis for Children
Cynthia Arnold, Ph.D.
Licensed Clinical Psychologist
New Leaves Clinic, LLC
200 S.W. Market, Suite 390
Portland, Oregon 97201
503-274-0996
DrArnold@NewLeavesClinic.com
www.NewLeavesClinic.com
We have a new source of clinical evaluation, consultation, and intervention in Oregon's Autism Community. Dr. Arnold is a licensed clinical psychologist. Her specialties include developmental and chronic disorders, as well as behavioral problems. Her practice does not focus on the use of medications. She can assist families by providing treatment (e.g., ABA & PECS), consultation (e.g., understand your child’s development and past assessments) as well as family/marital and sibling support. Dr. Arnold is here to stay in Oregon, and has opened a new clinic downtown Portland. She is originally from Kentucky, then went to Tennesse (Vanderbilt), California (PGSP & UCSF) to study. While at UCSF she studied with Dr. Bryna Siegel, (a well-known Autism esearcher and clinician). She completed her studies at OHSU/CDRC/Doernbecher with Dr. Darryn Sikora, a long time Autism provider and leader in the community. You can find more information on Dr. Arnold and The New Leaves Clinic on the web site above.


Direct Service Private Practice: Screening and Diagnosis for Children
Marie McMahon, Psy.D.
Psychologist
400 E. Evergreen Blvd. Suite #311
Vancouver, WA 98660
Office: 360-696-9594

We have another new source of clinical evaluation, consultation, and intervention in Oregon's Autism Community. Dr. Marie McMahon. is a psychologist in private practice in the Portland/Vancouver area providing behavioral therapy and consultation services. She specializes in work with children and families with Autism spectrum disorders an d facilitates social skills groups for children with Asperger's and High Functioning Autism.


Direct Service Private Practice: Pyschological Evaluations for Adults (children?)
Robert E. Scheider, Ph.D.
Vancover Guidance Clinic, P.S.
3112 Main Vancover Wa.
360-694-2016
A comprehensive evaluator who can provide a thorough neuropsychological evaluation for very informative and detailed measures of a child or adults full spectrum of strengths and deficits and P.D.D. and Autism Spectrum diagnositic findings as well.

Direct Private Autism Practice: Specializing in Aspergers and Medication Protocals
Laurie Olson, Psych. RN
1130 SW Morrison Suite 618
Portland, Oregon 97205-2217
503-224-6446

University of Washington
Center on Human Development and Disability

Contact: Dr. Geraldine Dawson
Phone: 206-543-1051/206-543-4011
Email:
dawson@u.washington.edu
Web:
www.washington.edu
This is the next nearest center for professional Autism expertise in a university research center that specializes in Autism studies, diagnosis, and treatment.

NW OREGON REHABILITATIVE THERAPY CENTERS
These are centers where you can access comprehensive developmental evaluations and rehabilitative services for behavioral, speech, occupational, physical therapies as well as augmentative communication supports for children with Autism and other early developmental delays. It is important to note that Autism research consistently indicates that clinically-based therapies need to be carried out over 20+ hours a week, year round, across multiple settings to have any long term treatment efficacy in improving the behavioral, sensorimotor processing, communication, and social relatedness symptoms of Autism. This means that to make an investment in rehabilatative treatment carried out in hourly sessions, parents without means to pay for an intensive therapeutic program, will likely need to learn these methods themselves, and participate in creating such a program, in order for therepeutic methods to be effective.

Children’s Developmental Rehabilitation Center (CDRC)
Oregon Health Sciences University (OHSU),
Portland, Oregon
503-494-8095
cdrcinfo@ohsu.edu
www.ohsu.edu/cdrc

NeuroTherapeutics

A center listing physical, occupational, sensorimotor therapies used with people with Autism
Oregon City, OR
503-657-8903
questions@nt4kids.com
http://nt4kids.com/

Project PACE
An array of applied behavioral therapies for Autism & RDI Therapy (A for-profit business)
in Beaverton/Portland Oregon
503-356-8334
http://
www.projectpace.info/

The Children's Guild Therapy Center
Now an Easter's Seals Program--comprehensive rehabilitative therapies
Salem, Oregon
Phone: 503-370-8990

HEALTH & NUTRITION SUPPORT PRODUCTS

Kirkman Sales
Specialized Nurtritional Suppliments formulated for children and adults with Autism. Recommended to THRESHOLD by the Autism Research Institute. Many (but not all) families report great success in improving their children's health and functioning within a short time. Sharone says: "HAVE THE WHOLE FAMILY TRY THE COD LIVER OIL DAILY!" You may be surprised how well you ALL may begin to feel and function better). It is a risk-free, affordable and well-known neurological health support for people with and without auto-immune problems.
Phone: 800-245-8282
Email: kirkman@portweb.com FAX: 1-503-682-0838
Web:
www.kirkmanlabs.com

N.E.E.D.S.
Pharmacy Grade, Allergy Free, Singular Vitamin Suppliments & Minerals for more accurate trails of individual elements such as B-6 (P5P) and Magnesium before using combinations suppliments, as recommended to THRESHOLD by the Autism Research Institute. Many (but not all) families report great success in improving their children's well-being and state of mind within a short time wite affordable and safe nutritional suppliments.
Phone: 800-634-1380
FAX: 800-295-NEED

NOTICE: It is important that families understand that nutritional diets and suppliments do not offer any kind of scientifically proven cures for Autism, particularly not any evidence that can be applied in any one case. Instead, they have show to be effective in improving many children's biological health and neurological functioning, which can support more optimum development. Such alternative approaches have shown to provide positive results for about 50% in children with Autism in replicated scientific studies. This warrants ongoing study, to determine if and how certain physical conditions correlate to children having/not having Autism, and whether the changes of Autism are the source of those conditions or whether those conditions contribute to Autism. The centers above will provide you with up-to-date tracking and review of such data.

However, it is also important to urge parents to not delay beginning early-as-possible and more intensive education intervention (20-40 hours a week across home-school-daycare providers.) This is the area of intervention with proven long term results for people with Autism, across the spectrum, regardless of the cause of their Autism. We know very well, the first impulse of a loving parent with resources is to put all your emotional eggs and dollars in the biomedical-cure-it-basket. Just try to understand and accept that educational Autism intervention will be both necessary and important regardless of the cause of your child's Autism, or the outcomes of even the best biomedical trials of treatment--because if your child is showing significant learning delays now, then that need is here now, and you can do something proven to help now. We continually see parents putting all their hopes in one narrow treatment basket that may show immediate, but less pivotal, symptomatic improvements. Yet this means that they miss out on the significant life span progress that is possible with well-established early Autism educational approaches, which an be very affordable and very effective, with little risk of failure or harm. Please, put some of your first eggs into a life span educational approach basket first. You will not be dissappointed. The bonus is that you will soon have solid objective baseline data for sound biomedical trials. This is a guide suggestion, based on research and practice.