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INDIVIDUALLY-BASED INFORMATION ABOUT AUTISM
Our individually-based information is presented in basic family orientation to intermediate provider practice guides, and advancing scholorship. Texts are organized, in this way on each page link, to meet the needs of our wide and diverse Autism community audience. The goal of this integrated approach is to provide an information system that can help us have a holistic map of how we each may or may not be aware of what we all do and do not know about Autism. This creates a use-able community knowledge brokerage for us all.
The purpose of our INDIVIDUALLY-BASED page links is to attempt to dialog about our human experience of our lives as persons with and without Autism. This Autism information is appreciated in terms of sharing the unique internal and external experience of each human being who must walk this journey. Here we can help us begin to dialog about our own living, working, and coping within and own life world. Persons with Autism and our individual family and service provider team members may face random droughts of needed information and heavy floods of highly technical and conflicting practice terminologies. This site is designed to let you walk through the texts at your own pace and preferences. It took a leap of faith on our part to let go and let be our readers walking through our texts. Yet, we found we had to bow to the truth that all best Autism practices are always very individualized. What we found was more important that controlling the access to information, was to manage its comprehensiveness and quality. Because we have sought out well-established research and universally common experiences we feel our site lets our individual readers get directly into valid, credible, reliable and relevant information about Person-focused Assessment, System-reoriented Providership, Community-based Program Design and Family-centered Planning practices that have been proven to help each and every person with Autism reach our fullest potentials and that empower each family to Chose Our Own Path. This information may help us walk along our long and hard early to middle passages, and onto to our later life span success in all our adult lives and work.
The goal of this fourth section of information is then to provide and share how individual's have widely hetergeneous expressions within the Autism Spectrum experiences and our unique personal experiences of its phenomena of self and perceptions of our own life worlds. Our research will seek to formally capture our developmental features and life experiences in bopth objectively realistic and subjectively truthful ways. This kind of qualitative research is a new frontier in Autism scholarship. Threshold supports this work because we are all so far behind other communities in recording our human stories of significant loss and real survivorship in ways that create even greater loss for us as people in loss. Forming, let alone finding, our individual voices is literally difficult for people with Autism. Being allowed a public voice that is allowed to arise from our own experience and that is accepted as important knowledge has not yet happened. Over the next few years this web site will begin to be available to formally gather and interpret our stories of our individual journeys to share with each other here. Our first big tip to participate in such research is to be sure to visually and verbally record our experiences in individual journals as we travel the early, middle, and later stages of your trek across our able diverse universe. Written, photo, film journals and functional products and creative works can helps us capture our individual worldviews. They will appreciated within our studies.
Individually-based knowledge about Autism is where we may find objective and subjective forms of formal research and informal information that record, analyze, interpret, and appreciate how individuals are living, working, and coping with Autism, as persons with and without Autism. Individually-based information follows each person as we walk within our own developmental potentials and lived experience of Autism. How Autism impacts our self, life, and work within and beyond its biological, cognitive, biosocial and psychosocial aspects is a kind of critical knowledge we are just beginning to appreciate for its great value. How we each may sense, think, feel, and communicate about the phenomena of Autism can be formally captured in measures of a person's development and needs over time, and the meaning-making communication systems that must be individualized to the person and any form of single subject case studies. Individually-based information can also be gathered and interpreted from our story telling, visual arts, music, personal journals and biographies. The presence of materials that qualify as formal individually-based inquiry demands a scholarly discipline and peer review that may be missing in self-published practice guides by individual providers, antecdotal tails of exceptional outcomes, all kinds of common knowledge, or urban legends and Autism community myths. These may be individually-based kinds of popular non-fiction and fiction, but not sources of formal knowledge and research. However, in combination with other research designs and scholarly knowledge sources, all our individually-based information can be appreciated in terms of its truthfullness and useful purposes. We just have to be careful not to try to substitute our personal views, which we have every right to hold, for other kinds of knowledge that may be more reality-based and more reliable for others to apply in our individualized interventions.
Any factual, conceptual, contextual, or individual bits of knowlege may be true, but any of these form of information can also be false, depending on the methods use to gather them and their proposed uses in relation to individual persons with and without Autism. Our website seeks to share and build a broader Autism knowledge brokerage in a way that can help individuals generate and find reliable and use-able knowledge in relation to persons with Autism.
*The Four Dimensional Model of Information which has been applied in the design of Threshold's knowledge brokerage has been used with the permission of Dr. Robert Silverman of the Fielding Graduate Institute. Scholarly Sources below:
Silverman, R. (2003). The professional use of substantive knowledge--Assessing one's compentencies. Retrieved October, 2003, from http://www.fielding.edu/private/hod/CUR/KA/profsilv03.htm
Honold, L., & Silverman, R. J. (2003). Organizational DNA--Diagnosing your organization for increased effectiveness. Palo Alto, CA: Davis Black Publishers.
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